 Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Gita,
It sounds like your sister is going through the same as all of us. I think she has probably lost more weight than she should but it sounds like they are already telling you this. You are keeping her hydrated via IV and that is good. The calorie count is low. I went up almost ten times that much after I kept losing weight. I am not sure of risks of TPN feeding. I did that for many weeks via a mediport and was not aware of risks specific to TPN. We did it at home and my wife accessed my port when needed.
Everyone is different with chemo and my nausea never subsided until weeks after it was all completed. Is there any reason why she can't take more than 2 cans a day. She should be about four times that amount with the weight she is losing. Any calorie boosting at this point would be fat or sugar. Boost has an over the counter high fat version that is almost twice the calories she is getting now.
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
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