| Patient Advocate (old timer, 2000 posts)
Joined: Dec 2003 Posts: 2,606 Likes: 2 | Thank you all for the sanity check! I have been timid in mentioning it to anyone except my wife and the doctor and they don't seem to understand when I describe it but y'all (Texas for everyone) describe it exactly like it feels.
Dinah, I ahve had the memory struggles since chemo and the nurse told me it was "chemo-brain" caused by the radiation breaking down the brain blood barrier and letting the chemo circulate through the brain. I have forgot the wierdest stuff and some of it comes back at very random times. You now have an official excuse!
Ed
SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023
| 
