John had his PEG replaced in radiology last Thursday. They put in the same kind as before--one that had a removable cap. The thing that struck me as odd however, was the fact that this PEG had no button or locking device on the outside of the tummy. We asked about this and the fact that it had 4 inches of play in and out of the stomach. No problem we were told. Sunday John started with terrible diarreha and gas after each feed. We thought it was a "bug". By Tuesday we were no longer convinced and we talked to our daughter and brother who are doctors. Our daughter (peditrician) said that she thought the tube was emptying into the intestine--that it had moved. We went back to radiology yesterday. They put in dye and yes it had moved into the intestine. It had to be removed again and a new one put in. This is the one with the three heads. It is alittle fatter. It has a belly stopper on the outside. It was terrible for John to go through because the hole had to be stretched to put this in. He is doing good now. Again I admire the courage of you gals and guys.
Meredith