Gail, once again, you did not understand what I was saying. The blanket statement referenced "dealing" with hearing loss issues. I am fully aware of the side effects (read my posts...I did a lot of research.) Yes, hearing loss is a quality of life issue...we have been dealing with it for ten years now...but we know that one can compensate with it in many ways. My husband also lost sight in his left eye 30 years ago in an industrial accident (so no left eye, no right ear) but he has passed his FAA exams (private pilot) with flying (no pun intended) colors...examiner was very complimentary of his techniques. So, in other words...he has dealt with his disabilities like a lot of other people deal with theirs...and go on with their lives.

We did have the audiometrics done prior to treatment so we have a baseline. We don't feel that we have come to our treatment decision in an irresponsible manner and we are staying positive that the outcome is good.

Happy that your hubby is doing well and that his treatment at Johns Hopkins was seemingly successful. I do sense that you have a little bias that treatment decisions made anywhere else are inferior. I hope that is not the case...not all of us can arrange for treatment at J H.

Sorry, if I sound a little short, but I want to make sure that you and other readers understand what I wrote. I was not arguing the risks..we are a intelligent, well educated, well informed couple that decided to take the most aggressive approach to this cancer possible. If we have problems along the way, we will have do as we always have...deal with them.

Deb


Deb..caregiver to husband, age 63 at diagnosis, former smoker who quit in 1997.
DIAGNOSIS: 6/26/07 SCC right tonsil/BOT T4N0M0
TREATMENT START: 8/9/07 cisplatin/taxol X 7..IMRT twice daily X 31.5.
TREATMENT END: 10/1/07
PEG OUT: 1/08
PORT OUT: 4/09
FOLLOWUP: Now only annual exams. ALL CLEAR!

Passed away 1/7/17 RIP Bill