Hi Lisa, It is a fine line and you're the only one that can decide how much information is enough. It sounds as if the team is being very responsive to your symptoms so that's encouraging.

Jack does have a high frequency hearing loss after 4 cycles of cisplatin but it's something he can live with - and he still feels that cisplatin was the right choice for him because his cancer was very advanced and it's got the track record. It's a very personal decision on what you're willing to risk and put up with. There is no universal treatment plan, it depends on your specific issues.

If it starts looking likely that you do need a PEG don't wait too long or they may not be able to put it in. Again, no right or wrong answer there but Jack found it very helpful towards the end of treatment. It's critical to keep swallowing something every day with or without the PEG as that will help with recovery. Also stretching your mouth to prevent trismus does wonders.

I hope it continues to go well for you.
Regards JoAnne