Lisa,

As you see I also had Cisplatin but now with my permanent hearing loss I wish I would have had Carboplatin. JMO. Have you discussed this with your MO?

FYI, My first 2 weeks went OK with Rad and my first chemo (given to me the first day of rad) went OK. It went quickly down hill for me after that. As we are told 1,000,000 times, everyone can react differently. Yes I agree that's possible but the overwhelming majority of us suffer like dogs between the 3rd week of Tx and the 3rd week post Tx so hang in there.

The reason I point this out is that I was made to think by my RO & nurse that I was having an unusually tough time and it played on my physic the whole time. I kept thinking maybe I was having a bad time because my cancer was really bad ( an oxymoron). I did not find this site until 2 weeks post Tx so I didn't have the advantage of the group telling me my reaction was NORMAL and it made me happy and mad when I got my responses from my first post. I just want you to be prepared in case you are normal.

That said, there are definately things YOU can do to make the Tx go better:

1. Drink at least 48ozs water every day;
2. Drink at least 2000 cals of food every day;
3. Communicate with all your docs constantly about anything that bothers you and if what they prescribe doesn't help, communicate that;
4. If you do get a PEG, continue to exercise your mouth and throat muscles;
5. Don't worry about sleeping a lot, your body will need it; and
6. Talk and or complain to us as often as you feel like it. We, unlike your well intentioned docs & nurses, have been through exactly what you are going to go through.