OP  Supporting Member (50+ posts)
Joined: Mar 2007 Posts: 55 | Hi David
Thanks for responding. I did start having ringing in my ears about 5 days after my first dose of Cisplatin. I called my MO and she stated that she would lower the next dose by 20%. My hearing seems to be ok as far as I can tell, and the ringing is lessening over the past couple of days (it has been 9 days now since the chemo).
I know what you mean about well intentioned docs and nurses - I happen to also be an RN but with very limited oncology experience. I could never pretend to know everything there was to know about what my patients experience like many of my own nurses do! However, I can say that they do listen to me and that every complaint I've had has been answered satisfactorily. I'm getting treated at MDACC in Orlando - they've been awesome.
The weird pucker feeling is gone today - and I'm noticing less thin saliva and more very thick gunk today. I'm thinking that maybe I was feeling a salivary gland giving out?
Lisa
36 years old at diagnosis
SCC of the tongue T2N2bM0 Stage IV
post hemi glossectomy and neck dissection (3/28/07), finished 6 weeks of radiation and Cisplatin x2 6/19/07. Biopsy taken from right side of tongue 7/17/08 - results showed infected abscess and no return of SCC!
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