 Patient Advocate (1000+ posts)
Joined: Aug 2003 Posts: 1,627 | There are some people that had bad experiences with the fitting and I was certainly one of them. NO ONE had prepared me for what was going to be done and being bolted down and restrained that way had a horrible effect on me. I was upset for a couple days about it. My first day of radiation was terrifying because I was already scared of the mask. I used simple counting to get me through it. I counted in my head. Good news is that, by middle or so of treatment, I had no anxiety over the mask. I DID throw the thing away at my "ringing of the bell" ceremony though!
SCC Left Mandible. Jaw replaced with bone from leg. Neck disection, 37 radiation treatments. Recurrence 8-28-07, stage 2, tongue. One third of tongue removed 10-4-07. 5-23-08 chemo started for tumor behind swallowing passage, Our good friend and much loved OCF member Minnie has been lost to the disease (RIP 10-29-08). We will all miss her greatly.
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