Hi there,
Decision day was grim, new scan results showed spread to multiple, bi-lateral lymph nodes and a poorly differentiated (aggressive)tonsillar primary.
Treatment recommendations are now for chemo/radio to large field as spread is as far down as clavicle and surgery is out of the question. Ho hum here we go - had mask fitting done and ready to roll soon.
The only unscanned part of me is my brain and of course there is a recurring worry that it might already be lurking there and that all this treatment will be in vain ( in my weaker moments only)Does this ring bells with anyone? Did you ever feel like running away to the mountains for your last few months?
Am trying to come to terms with the gross incompetance/delay/ignorance that has allowed my cancer to spread to the other side of my neck - it was clear last month and the margins on the right side were clear and operable! At least my medical team now are wonderful and have restored my faith somewhat but I feel that I could maybe have been the spared chemo and possibly even my life!
Am off ski-ing now with my sister and my dog, feeling fine in myself and the whole surreal nightmare can wait until tomorrow!!!
Best wishes to all,
Frances and Meryl.