Bob,

I am somewhat relieved to hear your news. I have been developing a series of fibroid knots along my chest just under the collarbone and was wondering if should concern me. I get them sometimes on my legs and have all my adult years. I went ahead and had a chest xray yesterday and scheduling a PET scan as we talk. I realize when I have shortness of breath it is because I am not breathing from the tension!

Yep, the gift that keeps on giving. I am glad to hear you shouldn't worry. Wouldn't that be nice if we could just turn it off when they say that?

I told the ENT yesterday that it feels like the night before an exam I am preparing to go before the Life or Death Tribunal..hoping for the thumbs up. I asked him if it would ever be different and he said emphatically NOPE. He then told me the good news is that after my next visit he will move them out a couple of weeks so my anxiety won't happen quite as often.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023