Hi Julie, as one nurse to another - it's tough to be a caregiver when the patient is someone you love. I found that everyone assumed I already knew everything and/or would just handle all the care whether I was familiar with it or not. First and foremost you are Rich's wife and you have your own feelings to deal with about what is happening. On the other hand, you do have the background to ask questions and get your the information you need.

Many, many people reminded to take care of myself and one day I finally decided to listen. Please let me know if there is anything I can do to help or if you just want to vent.

If Rich will only accept weekly visits that makes sense. I think you're right about giving him as much control for as long as possible and taking your cues from how the situation is going. Hospice is there to support, not to take over your lives.

Do you have a good support network? Glad to hear that you're able to get out a little bit.
Regards JoAnne