Hi Patty,
I too am so sorry to hear about Joe. Please take care of yourselves and know that we are all here for you. I was so pleased to hear about Dr. Collins being of assistance. You're absolutey right about the comforting feeling one gets from knowing there are doctors out there who will help even when they're not involved with a patient's care. Warm regards,
Didier

Mom's caregvr. DDS failed to dx 01/03. Dx Stg IV SCC 05/03. Induct. chemo, IMRT, 5FU, H, Iressa, Neck disect, radiation. Dad's caregvr. Dx 01/04 Ext. Stg SCLC. Mets to liver/bone 08/04. Died 11/12/04. Mom tongue CA dx 06/13, hemiglossectomy (80% removed) 08/13. Clean margins and nodes, but PNI. 6/15/15: Tongue CA at base of remnant tongue. Declined further tx; hospice.
Died 10/13/15. What a long and difficult journey.