 Patient Advocate (old timer, 2000 posts)
Joined: Nov 2002 Posts: 3,552 | Julie,
DO NOT CALL 911! They are required, by US law, to take heroic life saving measures! Your hospice people should be guiding you through this and should have given you specific instructions on this issue. His advanced directives and DNR orders should be keep readily available. My hospice people told me to keep them on the refrigerator so they were easy to locate in a panic situation. Even with these, the 911 EMT's may ignore them.
Liz's post was truly inspired and she just went through this traumatizing event. Her advice is absolutely accurate.
He may need to be moved to a hospice facility so that you can be truly be a family member and not part of the care team. Would it be possible to get a full time nurse (or even team of caregivers)?
I am so sorry that you are faced with this and will keep you both in my prayers as you face this phase of the journey.
Gary Allsebrook
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Dx 11/22/02, SCC, 6 x 3 cm Polypoid tumor, rt tonsil, Stage III/IVA, T3N0M0 G1/2
Tx 1/28/03 - 3/19/03, Cisplatin ct x2, IMRT, bilateral, with boost, x35(69.96Gy)
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"You are a mist that appears for a little while and then vanishes" (James 4:14 NIV)
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