Julie
My heart goes out to you. This is the most horrendous position for anyone to be in. Surely there is someone on the hospice team with enough compassion to take away the caring of your husband from YOU and leave you to be a wife to hold hands, hug, to give the comfort only you can give. You cannot spend the next part of this journey alone and terrified of what could happen. As Liz says it may not, but I remember Christine who was on the board three years ago having the same fears, and like Liz it did not come to that.
But if you cannot get more nursing help yourself, please get a friend or a family member to stand up for YOU.
Sorry, I think I just got on my soapbox and gave you a lecture. Sorry but your post moved me beyond words
Sunshine.. love and hugs
Helen