Hi All,

I haven't been on the site in a while, for my son just started little league baseball and work has had me very busy. This disease has me a bit neurotic also, however, I try to stay positive. Many people replied to my earlier posts and I truly appreciate the support and advise, although I did not follow the advice of those who recommended a Comprehensive Cancer Center (not by choice...however). Since my surgery, I have had 2 biopsies, one negative (inflammation), the other hyperkeraytosis w/moderate to severe dysplasia. The ENT who has been treating had me scheduled for surgery, cancelled brcause it looked better (he said could have been because of the surgery) and was going to refer me to Roswell Park for Photodynamic therapy. The biopsy was almost 2 months ago and they have now determined that I am not a candidate for th PDT. I was looking very forward to being treated in a CCC. I have since discovered another suspicious "lesion" in the area of the primary tumor (a bit more anterior) on my lower inner gum. I am EXTREMELY concerned and very scared. I am about 3 1/2 months post-op (surgical excision w/no rad tx or chemo), was given a pretty darn good prognosis, but have this TERRIBLE fear of recurrence...esp with dysplasia and a new area that has not healed in over 3 weeks. I see my ENT tomorrow and am sure another biopsy is in store. Any advise or suggestions about other treatment options, or what I should do would be GREATLY appreciated. I may just be making myself a nervous wreck for nothing, but I don't think so! Any advice would help! Thank you so much, and I wish all of you the VERY best in you recoveries!!!!