Friends,
This morning I got a telephone call from the P.A. for my oncologist at MDACC (lacking in bedside manner) informing me that my CT scan last week showed a node below the chin that was present in a previous CT scan last year, but appears to have changed somewhat. She said that the oncologist ( who is out of town ) wants me to come back in 3 months for another CT scan so that they can make a comparison. I asked that she have him call me when he returns to town.
I am not satisfied with this little bit of information so I immediately emailed my surgeon's P.A. who has always been a caring friend to me. She will have the surgeon take a look at the scan and the radiologist's report and get back to me. I also emailed my radiation oncologist and asked him to take a look.
Even though I have been dealing with this stuff and MDACC for almost 3 years, I had to remind myself to be my own advocate and not to sit back and just take it. It annoys me that the only person that I heard from was an insensitive P.A. and the prospect of sitting around for the next 3 months wondering what is going on is not pleasant.I hope to get better explanations from the various doctors.
Danny G.