I had 35 IMRT treatments in May of 2003. My salivary function has never returned *wish more than anything that the doc would have given me amifostine, when I requested it. My life has dramatically changed, but not because of the cancer....I would much rather have surgery every week compared to realizing my saliva problem every 5 minutes when I'm awake and about every hour when I'm asleep (more when I have a cold).


I've tried acupuncture, salagen *pilocarpine hydrochlordie, and evoxac *cevimeline. I sip water and use a humidifier. I've also tried almost ALL of the over the counter stuff. Apparently this is causing bone problems with my teeth also. WHAT ELSE CAN I TRY???


Destiny Lorance
Tall-cell variant 2000-present
Kansas City, Kansas
[email protected]