Patient Advocate (old timer, 2000 posts) Joined: May 2002 Posts: 2,152 | Hi Tower, My original dx in 1997 was also an unknown primary with mets to 1 node in neck. Paniced, I opted for modified neck dissection and 36 general radiations treatments. No chemo, no peg. Neither recommended at the time. Did no research, just wanted it gone. It worked. But notice I had a new cancer 4 years later so could not have radiation.
For cancer, I always opt for surgery if it will not drastically impair quality of life. I want this out of my body before it does something nasty like get in the lymph modes and escape to the rest of the body. I was told that sometimes an unknown primary shows up during radiation. Mine didn't. For an unknown primary, XRT meant for me radiation from the tops of my ears to my armpits. I did not know that I could only have radiation to an area once in a lifetime. This can drastically impair salivary fucntion. Make certain thet put on Saligen or equivalent and don't let them pull your teeth unless you think it is absolutely necessary.
Like everyone else, I think your docs need to give you a better dx than what you currently have. At 17 weeks out, you are already in the 'wait and see mode' and that is not good if you already have a suspicious something.
Were it me, I get a third opinion within days or opt to have the surgery yesterday to find out what is really there. What are the downsides to having the surgery? If they are taking your thyroid, make certain you have a full thyroid test before so you know what your TSH and T3 uptake levels are. Getting this back to 'your' normal is very important after surgery.
Keep us posted as to what they or you decide.
Take care, Eileen
---------------------- Aug 1997 unknown primary, Stage III mets to 1 lymph node in neck; rt ND, 36 XRT rad Aug 2001 tiny tumor on larynx, Stage I total laryngectomy; left ND June 5, 2010 dx early stage breast cancer June 9, 2011 SCC 1.5 cm hypo pharynx, 70% P-16 positive, no mets, Stage I
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