Tower, I initially had an unknown primary as well. However, after a tonsilectomy, the primary was found in my right tonsil. Do you still have your tonsils? If you do, might want to do some biopsies of the tonsils to check them out.

If you end up needing IMRT rad, remember that Sylvester Cancer Center in the University of Miami hospital, has IMRT (2 machines) and I think that is close to your home in the islands. They also have a free stay-on-campus program during radiation and chemo. Might be something to consider if the primary site is found. I don't think IMRT is a good idea either unless the primary site is known. So hang in there, your still on my prayer list.


Regards, Kirk Georgia
Stage IV, T1N2aM0, right tonsil primary, Tonsilectomy 11/03, 35 rad/3cisplatin chemo, right neck dissection 1/04 - 5/04.