Tower,

I was confused on a couple of things. Both doctors mentioned thyroglossal duct, assuming TGD is the same (form rad oncologist). From what you are saying they both believe it is a carcinoma in the TGD but only one believes it is squamous cell and the other believes "some" type of carcinoma? Is this the one versus ten documented cases?

There are several troubling things in your post. Both doctors believe you have a cancer that you believe is agressive; the capsule ruptured on initial removal; the primary site is not known. I am certainly not a doctor but just these alone would worry me enough to first seek another opinion as everyone suggests but also plan on surgery with some form of dissection and field radiation.

Although your doctors have presented you with a wait and see option, is this really what you want to do knowing how horrible this cancer can be. Waiting may make your decision easier and be more palatable for you right now but will most likely be an irreversible decision at some point that you won't know. Sounds like Russian Roulette with 5 bullets in the chamber instead of 1. You may hit the lucky empty chamber but who wants to take that chance?

Best wishes for a quick and thorough analysis and choice of the best possible treatment plan to beat the beast now.

Ed


SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023