Diane,

I am sorry you have such rough news. It sounds like you have reasons for the red flags to start popping up. But, it also sounds like the team is on top of it. Take out a pencil and piece of paper and write down absolutely every question you have. Call the doctor and ask all of them so that you have all the cards on the table and can have somewhat peace of mind through a very difficult time.

It is okay to worry, even quietly, given the information that has been presented to you. Try to use this time to get the answers you need. Your husband is so fortunate to have you by his side right now. Be as strong as you can but remember you are only human. Or, as my wife always says, you don't have to jump out of a phone booth with the big S on...all the time, at least wink . Hang in there, we are here to lean on whenever you need it.

Ed

SCC Stage IV, BOT, T2N2bM0
Cisplatin/5FU x 3, 40 days radiation
Diagnosis 07/21/03 tx completed 10/08/03
Post Radiation Lower Motor Neuron Syndrome 3/08.
Cervical Spinal Stenosis 01/11
Cervical Myelitis 09/12
Thoracic Paraplegia 10/12
Dysautonomia 11/12
Hospice care 09/12-01/13.
COPD 01/14
Intermittent CHF 6/15
Feeding tube NPO 03/16
VFI 12/2016
ORN 12/2017
Cardiac Event 06/2018
Bilateral VFI 01/2021
Thoracotomy Bilobectomy 01/2022
Bilateral VFI 05/2022
Total Laryngectomy 01/2023