"OCF across the pond" Patient Advocate (1000+ posts) Joined: Feb 2007 Posts: 1,940 | Zoe i think both you and i know that in England we do not have as much access to our records and treatment plan as our cousins in the states.the reason seems to be that we DONT pay for our treatment directly unless we choose to be treated privately.Rad and Chemo plans and doses are decided by the treatment team, and we are just told what is going to happen.That doesnt mean you cant ask ,just that you wont have the information volunteered. With the new freedom of information act you do of course have the right to see your medical records but i dont think too many people have availed them selves of this new law yet.
I was very lucky to have a complete copy of all Robs records sent to us by the General Dental Council who are taking his dentist before a disciplinary board in September.I found it very reassuring to read all the lab and scan results and confirm that his medical team had been 100% honest with us and not kept any information back re his diagnosis and prognosis.Unfortunately this is not always the case in the UK and your records could just as easily contain things you hadnt understood or just didnt know so i guess it all depends on what information you want and what you might prefer not to know.
Liz in the UK
Husband Robin aged 44 years Dx 8th Dec 2006 poorly differentiated SCC tongue with met to neck T1N2cM0 Surgery and Radiation.Finished TX April 2007 Recurrence June/07 died July 29th/07.
Never take your eye off the ball, it may just smack you in the mouth.
|