 Senior Patient Advocate Patient Advocate (old timer, 2000 posts)
Joined: Sep 2006 Posts: 8,311 | David,
I still don't sense you understand that you have a VERY AGRESSIVE STAGE IV CANCER attacking your body and it has already spread to your lymph nodes and the next place it can go would be your lungs and your brain. There is no Stage 5, stage IV is the worst stage of cancer. I would not wait to see your MO. I would be on the phone right now and demand an appt. The chemo works best when given before your first rad and is most effective when the radiation is given while the chemo is circulating in your body. That's why most of us get our 1st chemo the first day rad is to begin.
Don't wait for others to make decisions for you, they are not the ones risking their life on their decisions.
Sorry to be so pushy but the next post I want to read from you is...I saw my MO today and....
David
Age 58 at Dx, HPV16+ SCC, Stage IV BOT+2 nodes, non smoker, casual drinker, exercise nut, Cisplatin x 3 & concurrent IMRT x 35,(70 Gy), no surgery, no Peg, Tx at Moffitt over Aug 06. Jun 07, back to riding my bike 100 miles a wk. Now doing 12 Spin classes and 60 outdoor miles per wk. Nov 13 completed Hilly Century ride for Cancer, 104 miles, 1st Place in my age group. Apr 2014 & 15, Spun for 9 straight hrs to raise $$ for YMCA's Livestrong Program. Certified Spin Instructor Jun 2014.
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