Hello Susan2992,

Sorry for your personal loss of your friend ChristineB. I have read many, many of her contributions on hear like Brian and Nels and others who were more active way back with similar experiences and things I searched for.

Sorry also to hear you are experiencing a recurrence, I hope the treatment for that comes along well for you.

I did see the Reddit group does hotlink to the Oral Cancer Foundation.

Maybe its mostly because there is a Reddit and Facebook app, and its a few extra formal steps to log on to a web based forum.

There seem to be more "off the cuff" type entries, but at least for the Reddit Head and Neck group, it seems like there are multiple new posts every day.

It does seem as if folks with pretty specific types of tumors and complications get responses from folks with similar situations pretty quick and often several responses.

One example is that two doctors from the Mayo Clinic's Head and Neck Cancer are doing a call in type seminar, Sept 2nd I think it is, free, for anyone to call in and ask questions or just listen to the things other people ask them, one a surgeon I believe and the other an oncologist.

I don't know that they asked anyone to post that anywhere on here.

I guess I could hot link to it in a new post, just passing along information....?

Best wishes,

R/
CQ