| "Above & Beyond" Member (500+ posts)
Joined: Jan 2006 Posts: 758 Likes: 3 | I agree that many OCF members have switched to Facebook groups. I belong to a few and there is generally more activity there than on the OCF forum. For many reasons I prefer the OCF forum over a Facebook group.
Some sad news to report - ChristineB passed away last year. She was a personal friend, a wonderful and kind person, and did a wonderful job welcoming people to the OCF forum. RIP Christine!
Susan
SCC R-Lateral tongue, T1N0M0
Age 47 at Dx, non-smoker, casual drinker, HPV-
Surgery: June 2005
RT: Feb-Apr 2006
HBOT: 45 in 2008; 30 in 2013; 30 in 2022 -> Total 105!
Recurrence/Surgeries: Jan & Apr 2010
Biopsy 2/2011: Moderate dysplasia
Surgery 4/2011: Mild dysplasia
Dental issues: 2013-2026 (ORN of lower jaw)
2026-It’s back! 12-hour Surgery-Mandibulectomy w/ Fibula Free-Flap * BOM tumor SCC * Sacroma in jaw likely caused by RT
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