Hello,

Back again. Not sure how active this place still is or if there is a better place to connect with people, but here I am.

I had SCC stage 1 in 2014. Had surgery and nodes removed and have been cancer NED since.

Made it 12 years. Well, things started to change symptom wise during Covid but things were still ok.

Then about 2 years ago is when I started having recurrent pain and ulcers in the same spot every single time so I started going in more frequently for checkups after being in the clear. In January of this year, I had my first biopsy since my diagnosis and it came back positive for moderate dysplasia. They said they wanted to keep a watchful eye on things. Had another biopsy a week ago because I kept having recurrent and consistent pain in the area that would not let up after having recurrent consistent canker sores in the same spot and this time it came back as "severe dysplasia". I'm thankful it's not cancerous but I don't know what this means. I have a follow up appointment on Friday.

Just wondering if anyone can give me an idea of what to expect? They gave me the option back in January of watchful waiting or surgery. But they were worried because they wanted to avoid removing more of
My tongue if they could saying that even though I healed ok last time, I might need speech therapy this time if scar tissue develops etc. I'm assuming this time they will want to do surgery because of the biopsy results to prevent a recurrence in the same area, but I am aware it doesn't mean it won't eventually turn into cancer anyway. Trying to see if anyone else has dealt with this almost a decade later?

Any suggestions or advice or even ideas of what questions to ask on Friday would be much appreciated.

Thank you all in advance.