Hi ChrisCQ,

Thank you for the reply. Yep that was me.

I actually have read through your posts a couple of times as it was one of the more detailed ones I could find about dysplastic situations. I appreciate you documenting it as it was very useful to see what others experiences have been with this.

That's kind of how I feel about this as well. I want to keep as much of my tongue as I can and since it could turn cancerous anyway, it's not a guarantee that surgery will help. It sucks because all cases evolve differently. They told me after the first biopsy they had no timeline for it getting worse if ever because it's different for everyone, but then I had recurrent pain and they did another biopsy and this time the results are severe vs moderate. Maybe that section has been worse for a while but it's hard to say if it has progressed in the last 4 months or if a different section was just worse than the other.

I did read about some of the trials. The annoying part for me is that I have been on metformin (one of the drugs they recommend) for over a decade due to PCOS. They also suggested low dose daily advil but that's about all. The current studies in my area are at capacity so I'm not able to join one but I do wonder what else they are testing. You're right. It is definitely a blind area when it comes to this. I also did ask about the laser treatment last time, actually due to your post, and they said they don't do that. I will ask again on Friday because I want to understand why she said no last time.

It is frustrating. I'm sorry you are dealing with this, too but thank you for the insights and reply.