Also BellaB,

I sent you a private message with the CCC nearest you and the one that is one of the best in the worlds that is the 13 hour drive away. Sorry I needed to edit my messages and remove the mentions of doctors and medical institutions (yikes, looks like I have some of my old posts violating that rule too, and not sure if I can still edit the older ones--oops, dangit.)

The link to the NCI's CCC list is there above and here https://www.cancer.gov/research/infrastructure/cancer-centers (the comprehensive CC's in addition to doing research are active in treating patients..you can read about the the types of cancer centers there that are NCI listed on that link.

There is one in St. Louis that you could call and see about getting triaged for a consultation

I think you can see private messages sent to you by clicking on the letter envelope shaped icon towards the upper right of the screen to the left of your screen name.


Sorry I did not ask my Dr. today about specialists for that type in St. Louis, seemed a tad awkward for me to ask, and although I have a great rapport with him, he was running behind from other late patients due to weather and was trying to catch up.

Best wishes as you make your next appointments and take each day at a time.

R/
CQ