Hi Brian and thank you for sharing the reality that you have faced in the post cancer phase. I was and have been struck by the tremendous resilience and adaptability of cancer survivors. I believe that it may be these very qualities that earn them the status of survivor.
I am a witness to the struggles but share in the comfort of having the support of others through this site.
This week we are going to some specialists to gather information on what can or cannot be done for my husband. I will write and share the outcome. The radiation treatment changed the shape of his esophagus. It’s really unclear what, if anything, they can do. Thank you for your willingness to offer ideas about the PEG and alternative nutrition. He is doing much better with consistent nutrition but I hope to enhance the nutrition soon. We will be in touch.


Base of tongue spread to 2 lymph nodes.stg?? Dx 5/5/09 peg
Tx started with 35 rad, 7 weeks cisplatin, 2 weeks 5-fu.
completed second course of tx with reduced dose of cisplatin &
5-fu. All clear
Post radiation swallowing difficulties 12 years later