Saw your post and we are also returning to this site 12 years later with swallowing problems as the issue.
My husband had base of tongue cancer 13 years ago. Since then, he adapted to the changes in his ability to swallow...gravy on everything! However last year he ended up in the hospital for aspiration pneumonia. This was followed by several weeks of speech therapy. We both thought it was a temporary thing. This year he was back again for aspiration pneumonia. This time a GI doc was called in and the damage from radiation was identified as the cause of his swallowing problems. A JPeg was put in again as a temporary measure. Today the GI doctor did a dilation of his esophagus but was not hopeful about regaining the ability to swallow. The jpeg may be permanent. Needless to say the news was devastating. I want to exhaust all possible options. Does anyone have any options for us to explore? Ideas, suggestions?


Base of tongue spread to 2 lymph nodes.stg?? Dx 5/5/09 peg
Tx started with 35 rad, 7 weeks cisplatin, 2 weeks 5-fu.
completed second course of tx with reduced dose of cisplatin &
5-fu. All clear
Post radiation swallowing difficulties 12 years later