Scared,
Been in your shoes and understand what you're feeling. My journey started with lichen planus about seven years ago. Lots of dysplasia and biopsies along the way. Five surgeries later I'm down to about a third of my native tongue. Hemi-glossectomy with flap replacement last spring and another surgery just last month. Fortunately I have not had to face radiation. All I can say is cut out any lifestyle risk factors, eat clean and try to stay positive. It's a rough road. PM me if yu want to chat more
Steve
Steve - SCC survivor
first SCC dx in 2016 by oral surgeon through biopsy of leukoplakia and lichen planus; first tongue resection 2016; three resections 2017-2020; partial glossectomy & flap reconstruction 2021; newly dx SCC return + lymphovascular invasion 5/22
tx to date surgery only - no rads, no chemo; speech therapy helpful, diet limited but eating mostly works
waiting for new treatment plan from care team - looking for tx other than full glossectomy
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