Kris and Brian, hello from a ways back!
This topic is most interesting and I too am experiencing some issues. Some that are bothersome and some that I wouldn't have worried about maybe I should be worried.

While I feel like I'm doing pretty well overall I'm reminded that most of my doctor visits are reminders that they aren't familiar with long-term radiation survivors.

Kris, your comment of pulmonary sarcoidosis has just lead me to a Mayo article that in turn will be brought to my GP very soon. He has been struggling to explain what has been seen in my right lung on several CT scans. Additionally, about two years ago I started having irregular heart rhythms (PVCs) that were considered to be caused by a failing mitral valve. A year ago that valve was successfully repaired but the rhythm problems have not fully resolved. Now I read that sarcoidosis could be something to look into for that as well.....

Could I ask why you are not a candidate for MRI? I have two MRI's scheduled in the next month.

At any rate, I'm happy to see that both of you are still forging ahead. Brian I did read some of what you've been through recently too.

Mark

Last edited by Mark; 06-07-2022 06:30 AM. Reason: typo

Mark, 21 Year survivor, SCC right tonsil, 3 nodes positive, one with extra-capsular spread. I never asked what stage (would have scared me anyway) Right side tonsillectomy, radical neck dissection right side, maximum radiation to both sides, no chemo, no PEG, age 40 when diagnosed.