Welcome to OCF. What you are describing sounds like the normal course of events to most of us here, though I'm sure others will chime in after me with their insights to help you out because everyone is a little different. First, it sounds like you are in a good place if they have put all of this in motion right from the get go. Let us know where you are being treated.

So, the dental issues question. After you have had radiation treatments, the bone surrounding any teeth that were in the field of radiation is altered. Basically it has compromised blood supply or vascularization. The micro blood vessels within it get destroyed by the radiation to some extent. That in of itself is not the problem, healing of that radiated bone if you have to have an extraction or other bone related trauma, like in an accident where you jaw gets broken is a problem. The bone is less likely to heal properly after being exposed to radiation. So any teeth that have issues that are repairable, you should get taken care of before radiation treatments start, any that are way beyond repair and might fail after your treatments are potential problems, and they need to be extracted. If your soft tissues (gums) around your teeth have periodontal disease that can be a problem if advanced, most other things can be repaired without extractions. But the goal is post treatment not to have a dental problem that cascades into something more. Regular dental work after treatment is no different than before, fillings, crowns, root canals all can be done without issues as the years go by. It's the surrounding bone that must not be disturbed. And, you will work hard for a very long time (forever) to keep your teeth in top shape because not doing so opens you up to really bad things. I won't detail those here since that's an issue for if something goes wrong. But you need to take care of your teeth like never before. Before and after treatments. Visit your general dentist have everything looked at, fix everything that is fixable. If something is periodontally compromised and is a future failure waiting to happen, it should come out and heal before radiation treatment for the cancer. Time is of the essence here, you do not want to delay treatments waiting on dental issues.

Not every one that goes through treatment needs a feeding tube, and you will hear from other poster with their experience. I had to have one though I didn't want it. MDACC doctors said if I lost 15% of my body weight I would have to have one, and that was that. Midstream I had one put in. It kept me from losing a ton of weight during treatment and it was the right thing for me. I had it removed about three months after treatment ended, and for a couple decades I ate normally. Today that has changed, but that is not relevant to your question. If they are going to put one in ultimately some time mid treatment because you can't tolerate eating or are losing too much weight, please check back with me or others, and we can help you deal with that. But it's not an issue yet. Some institutions decide to put one in prophylactically, so it is there if you need it. Personally I disagree with that. It's a simple 20 minute procedure to put one in, and it can be done at any time. It's no harder to put one in around treatment 20 than it is at the beginning. Not everyone needs one. It's just important to be honest with where you are nutritionally and weight wise. Just remember that weight loss and poor nutrition slow down your healing from the damage the treatments are going to inflict. So eat a couple thousand calories of GOOD nutrition each day (not junk food) and perhaps you might avoid this. It is not a good idea to "tough it out" and lose weight and strength just because you don't want the feeding tube and are not eating well. Robbing your body of the proper nutrition that will aid healing is a mistake. It is no big deal for a few months to have one. Again, when that issue comes up, lots of us can help you with they types of them, and things you might ask your doctors to consider when choosing one design for you, and how to use it. Keep in mind that it is a temporary thing.

You will need some pain meds during treatment to keep that from becoming an issue. Even though they are opioid pain meds for the most part, you will wean off of them at the end of treatment, and done properly it is no big deal to quit them. If you are disciplined about staying hydrated either by mouth or your PEG tube, dehydration shouldn't be an issue that they have to deal with. Many people get lethargic and sleep a lot during treatments, and between that, the narcotic pain meds, and not keeping good notes on what you have eaten, your water consumption, etc. it can be easy to forget to drink, or even eat. You won't desire to, food will start to taste not the way you remember, or even unpleasant, and many people don't stay on top of it. Getting through this is a job. Keep a medication and nutrition diary each day, since it's easy to become forgetful during this process, and not take what you need, or take too much of something is a good idea. Your daily log of notes will keep you on track and in in the groove. On that note, take a note book to all your appointments. Make notes about what the docs say, and a list of questions that you have for them which will be plenty, and you won’t leave with unanswered questions in your mind. If they ask you about your eating, drinking, or meds, you will have records if it all to speak with clarity about what you have done.

Everyones recovery time is a little different. Lots of things factor into that. Your health before treatment; are you a couch potato or a gym rat or something in between? Are you 25 or 65 years old. Are you keeping your nutrition and some activity level up to par or not. Any one of these things will make the time that it takes to recover different. Some of this is controllable, lots of it is not. Don’t think about this, what's going to happen is going to happen. Your job is just to get through the treatments and out the other side of them with no evidence of disease. (NED). The rate at which your life returns to some semblance of normal is not totally in your control at this point. Just take it one day at a time. The future will take care of itself.

I'm sure others will chime in here with their experiences so you get the sense that this is a path well travelled by many. There are no dumb questions, so just ask whats on your mind. While your doctors should explain everything to you, often times they are rushed and do not, and you may not get the answers that you need. We are here to help fill in the gaps, or at least tell you what you should be asking them to get their best answers.

You will notice that many posters have a signature under their posts that shows what they have had done and more. When you get into the process, create one for yourself and it will make answering your questions easier if we know more about what place in all this you are in. You can edit it, an add to it at any time.

One day all this will be in your rearview mirror. When it is perhaps you will come back to help those behind you on the path with your new experience based wisdom. We all wish you a quick and complication free journey through this. Brian


Brian, stage 4 oral cancer survivor. OCF Founder and Director. The first responsibility of a leader is to define reality. The last is to say thank you. In between, the leader is a servant.