Hi Chris, I was hoping someone with an answer would have responded by now. Unfortunately that has not happened. Oral cancer has all these side effects and very often they depend on the individual. My husband had his esophagus totally closed by scarring so that he couldn’t even swallow a sip of water. Doctors would tell us that it was REALLY rare but no one could tell us what remedy there was. So I understand your frustration.

You mentioned depression and anxiety, and my question is if you have sought out a therapist. I am not at all saying it is in your mind, NOT AT ALL. It’s just that sometimes a therapist may be able to teach you relaxation methods and other strategies that may help you cope a bit better.

I am truly sorry about what you are suffering, indeed I do. I so wish I could have some kind of answer for you.

Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards

Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.