I had cancer at base of tongue (HPV) a little over 2 years ago and was treated with Cisplatin once a week for 7 weeks and 35 radiation treatments... No surgery other than the initial biopsy.

I have now developed what the neurologist is calling cervical dystonia where my left sternoclatomastoid muscle is constantly twitching and hard spasming which locks my head in a straight forward position. I am also having a form of neuropathy where my tops of feet will go numb and I have cubital tunnel in my hands (mostly left side where I think I was radiated heavier). I have the ants crawling under my skin thing in both legs up to just above my knees and occasional burning in calves. Also, feels like my finger tips have no meat on them like I cut my nails too short or something, bothers me typing or touching my iPad. I've also had some tremor in my left arm and random stabbing pains all over my body. Then. there's these deep muscle pains in my legs that come and go.

Ive been dealing with extreme anxiety and depression and having so many symptoms that I can't tell what's real and what's not anymore or what's from the radiation, chemo or maybe cervical dystonia was separate from the cancer treatments. Ive looked at all Dr. Stubblefields papers and seen his Youtube videos and sets like most of this is brought on by the radiation but I want sure if you had to have direction or just radiation treatments.

Feels like my entire nervous system is going haywire.

Anyone have any idea what I can do to improve? My doctors are of no help, they look at me like i'm speaking another language when I mention radiation fibrosis.Ive had tons of blood work and found mostly normal other than very low lymphocytes. Ive been to 4 neurologists including 2 movement disorder specialists, tried baclofen and flexeryl, been to 3 physical therapists, had 3 MRIs and saw 2 neurosurgeons (MRIs show trouble at c3, c4, c6, c7). Had a small dose of Botox last week (12-20-2020) and waiting for that to kick in.