Thank you Christine and GM. I really appreciate your comments.
I'm now off of the pembrolizumab trial, with 5 doses to go. Unfortunately my body isn't producing some hormones or cortisol and my BP keeps dropping. The root cause analysis pointed to the immunotherapy drug, so to protect me, it's been permanently stopped. Now we're trying to find out if the loss of hormones and cortisol production is temporary or permanent. Some bloods will happen on Tuesday 26th and I'm waiting to see an endocrinologist to find out more.

Other than that I'm still doing well. Still trying different foods etc. I'll keep popping in because you all mean a lot to me and this forum has so much valuable information . I just can't give you all up.

Hope you all staying safe.

Oh quick high calorie milkshake..chocolate ice cream blended with full fat milk (in UK we also have gold top milk which is higher in fat. I drink 3 litres a week) hazlenut chocolate spread, hersheys chocolate syrup, single cream (your half and half I think) and a chocolate ensure. Utter bliss.


F 39 x-smoker no alcohol
05/20/19 T4aN1/N2bM0 SCC a whopper of a tumour at 8cm long & 4cm wide
Pembro pre & post surgery
RIG
Glossectomy ND RFFR 08/13/19
RT x33
2x cispltin
So far, no evidence of disease
Now an author of a recipe book for mouth cancer patients