 Assistant Admin Patient Advocate (1000+ posts)
Joined: Oct 2012 Posts: 1,275 Likes: 7 | Hi John, Do you have access to a dietitian at your hospital? I would make an appointment and get some advice. Have you let your doctor know that you’re having trouble with swallowing because of the gagging? It may be anxiety and there’s medication for that. You don’t want to lose muscle or become dehydrated because you can’t swallow. You will feel really awful when you become dehydrated. The doctors suggest checking the color of the urine as a way of checking whether one is dehydrated. There are still four weeks to go so it makes sense for you to get some help now.
Gloria
She stood in the storm, and when the wind did not blow her way, she adjusted her sails... Elizabeth Edwards
Wife to John,dx 10/2012, BOT, HPV+, T3N2MO, RAD 70 gy,Cisplatinx2 , PEG in Dec 6, 2012, dx dvt in both legs after second chemo session, Apr 03/13 NED, July 2013 met to lungs, Phase 1 immunotherapy trial Jan 18/14 to July/14. Taxol/carboplatin July/14. Esophagus re-opened Oct 14. PEG out April 8, 2015. Phase 2 trial of Selinexor April to July 2015. At peace Jan 15, 2016.
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