Thanks so much for the replies! The calm and practical way everyone on this site responds is very reassuring. Things have improved a bit in the last couple weeks. Bob had another swallow test and did really well. Speech therapist has recommended that he can start on some soft foods (soup, ice cream, milkshakes, etc.) The lymphadema seems to be improving too though he's still not sleeping well. I guess you can't have everything. His anxiety is pretty intense right now with all the follow up scans so I'm sure that's not helping. He's also going to have his first PET scan tomorrow. Our insurance would not cover one earlier because he was not considered "high risk". Two days after a CT scan, they agreed to cover it so that makes us both nervous but I try to remember not to worry about things I can't control and hope for the best. Thank you again!