2 weeks ago I was diagnosed with Stage 4 Oral Cancer (T3 N1 oral squamous cell carcinoma) in the left side of my tongue, but has just crossed the middle.

My team have suggested full glossectomy and reconstruction, addition of permanent PEG and tracheostomy for life, although they aren't removing my larynx. Followed by radiation therapy.
They have also suggested (and booked) me to meet another team for a second opinion.

I'm 39 years old, social smoker and minimal drinker, which sucks.

I'm just navigating the site but would love to talk to people who are living with a trach and PEG. I'm in the UK, but happy to read all experiences.