Wow! thank you so much for the thoughtful, thorough reply!!! I really appreciate it! Why haven't any of my doctors told me this stuff? I've certainly asked ... multiple times! I don't like that they just tell me to eat junk food. I'm trying to create new, healthy eating habits to get and stay healthy. I have also been exercising (which I never did before). I will take your advice and up my caloric intake a bit more. I was bigger than I should have been before all this happened, so I don't want to get back all of my old weight, but another 10 or even 20 pounds wouldn't hurt me at this point. I went from a size 14 to a size zero. Yikes! Which is why I posted this question. It sounds vain to ask about clothes, but this is truly a practicality issue. My old clothes literally fall off of my body. I had to buy a few things to look respectable at work, but I don't want to go crazy with a whole new wardrobe if I'm likely to gain a bunch of weight back. On the other hand, I don't want to buy things that are a little baggy, thinking that I will "grow into" them later, if I am going to be this size for the rest of my life. I wish I had the money to buy all new stuff every year, but I don't. I guess I'll just continue to pick up a few things from the thrift shop to get me through each season. After 2 years or so, hopefully I'll have a better handle on my weight and can feel better about buying nicer things.

You are SO right about not getting better as fast as I think I should! I keep thinking I should be better by now (less fatigue, normalizing weight - I know the mouth issues are not likely to ever go back to 100%), but my oncologist, radiologist, and ENT, all said I am doing great. I wish one of them would have said that it takes up to 2 years. That takes a lot of the pressure and stress off of me, as I tend to have high expectations and get frustrated with myself when I can't deliver. So, again, thank you for your response. I feel a lot better!!!

I would love to hear others' experiences with their weight as well, so if anyone else is reading this, your reply would be most appreciated!