Dave, good to have you as a new member. You are surely well educated about all this stuff - but can pick up some "from experience" tips here - sometimes the patients seem to have a handle on issues that the doctors and researches don't pay attention to.

I'm really appreciating your and your girlfriend's questioning of the doctors. At almost three years out, my husband's ENT joked at the last appointment that he was going to have to start adding on a surcharge if we continued to arrive to appointments with zillions of questions.

No doubt...you are in for a rough ride but, with your good attitude and determintaion, you'll do great.

Anita