KristenS,

I’m sorry for your troubles, and wish you a speedy recovery!

You just made me think about the osteoporosis I have. For some reason, probably from hip pain, about two years ago, I was tested by Dexa Scan, which showed osteoporosis. I can’t take the medication that may help due to jaw fracture from radiation, Osteoradionecrosis, and basically forgot about it, except for the daily pain. It could be from medications or other definiency, but I didn’t see anyone else except my current doctors. Tylenol for arthritis does help got a short time.

I also suffer from low blood pressure. Actually, orthrostatic hypotension (postural hypotension) where my blood pressure drops upon sitting g and even more upon standing to the point of feeling light headed. I usually felt it coming on, and able to sit or fall into the chair or bed, but recently, I just passed out! This happened last October, and was hospitalized due to injuring my leg, but luckily, i didn’t fracture anything. A few weeks ago, after exiting a taxi, I had to hold onto the telephone pole for dear life, so I didn’t fall, until the incident passed. A week later I did faint in the house, got knocked out, after falling and hitting my face on a laundry bag, and then the back of my head on the wall and floor. I was lucky again, and held overnight for observation. The thing is when I fall I can’t get off from the floor, and have to pull myself to a phone, and unlock the door for EMS.

They have support stockings that may help, but the neuropathy in the legs were bothered too much. Getting up slowly, with your head downwards arching up, and stadiny In place for a minute. That’s my situation, but everyone can be different, and best to have your doctors tell you.

Good luck with everything!


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs