reluctant caregiver here!

one day at a time. it's all we can handle and some days, even that's too much.

last radiation treatment was Oct 4. similar cancer but worse than your husbands as mine had many lymph nodes involved. He is working a few full days a week but not up to 5 yet. Lays in bed the rest of the time but he did that before cancer.

Mine has another PET scan scheduled in April as doc isn't sure they got it all despite biopsy and PET scan in december. husband says they just want to make money so I"m not sure he will do another one.

He is getting the feeding tube removed soon but he ate pies (whole pies) to keep from losing weight so they would remove it. He's always looking for the short cut so not surprpising he went to that length.

Best wishes on this journey that no one would sign up for.


Spouse of 58 yr old with BOT cancer
Stage 4a HPV16 positive
3 chemo treatments cisplantin
35 radiation treatments 7000 cGy
former smoker/chewed tobacco for 38 yrs.
1/2020 diagnosed with cancer near TMJ
4/2020 chemo 5 days every 2 weeks
6/2020 proton therapy
9/21/2020 cancer free