Thanks so much for the insight! I will discuss this with my PCP and ENT when I see them. It sounds similar but at times all I have is tongue pain which eventually leads to jaw pain and difficulty swallowing. I have had numerous swallow tests which always show a minor problem swallowing, but no treatment needed for that issue. I have also started teeth repair, but dentist says everything is normal except for the damage to my teeth from radiation, which currently is repairable.

I believe the main problem might be scar tissue in my tongue (which was indicated by all my doctors as a possible cause), but can't get one to definitely diagnose it or tell me what course of action needs to be taken to fix it.

So I keep trying to find an answer myself and appreciate all the feedback I can get! My list keeps growing of things to discuss with my doctors...LOL!