Sunlion07,

I still have tongue tiredness and pain 10 years out from my original diagnosis, 5 years out from my last treatment, and 2 years out from my jaw replacement.

I’m glad that all your tests came back clear as a recurrence should be the first concern with pain. I did go to speech therapy a few years and were helpful, but have been neglectful in the exercises. I did sleep with a humidistat for several years, and that was helpful too with dry mouth and awakening, rinsing, as did sleeping on an incline.

If speech and language therapy is available in your are, especially through your ENT’s office, that may be helpful too.

Any dental exams lately? My dental surgeon in my head and neck cancer dept diagnosed my osteoradionecrosis thus the pain in the jaw then.

Good luck


10/09 T1N2bM0 Tonsil
11/09 Taxo Cisp 5-FU, 6 Months Hosp
01/11 35 IMRT 70Gy 7 Wks
06/11 30 HBO
08/11 RND PNI
06/12 SND PNI LVI
08/12 RND Pec Flap IORT 12 Gy
10/12 25 IMRT 50Gy 6 Wks Taxo Erbitux
10/13 SND
10/13 TBO/Angiograph
10/13 RND Carotid Remove IORT 10Gy PNI
12/13 25 Protons 50Gy 6 Wks Carbo
11/14 All Teeth Extract 30 HBO
03/15 Sequestromy Buccal Flap ORN
09/16 Mandibulectomy Fib Flap Sternotomy
04/17 Regraft hypergranulation Donor Site
06/17 Heart Attack Stent
02/19 Finally Cancer Free Took 10 yrs