Platinum Member (300+ posts) Joined: Jun 2013 Posts: 346 Likes: 3 | Have you been practicing swallowing all along? If not, take it slowly ... you don't want to aspirate anything! (Actually, you'll have to keep a watch on that for a very long time either way, but if they didn't mention it to you ... now you know.) Yes, definitely work on that, and as you get to feeling better, there ARE therapists who can help with swallow if you find you need that.
Sounds like you've been doing a lot of the right things, and have doctors who are on top of the details ... that's great! Don't fret if you're not feeling great right away. It's a long-haul recovery, and we're all here to keep cheering you on as long as you need. Me, I still sleep propped up these several years later ... it just helps. (That, and Prilosec ... I can tell when I skip too many nights!) But it was a doctor's recommendation first.
If you're already starting to gain weight back, you're doing great! Very proud of you and for you! Woo hoo!
Lots of hugs and happy New Year wishes!
Surgery 5/31/13 Tongue lesion, right side SCC, HPV+, poorly differentiated T1N0 based on biopsy and scan Selective neck dissection 8/27/13, clear nodes 12/2/13 follow-up with concerns 12/3/13 biopsy, surgery, cancer returned 1/8/14 Port installed PEG installed Chemo and rads 2/14/14 halfway through carboplatin/taxotere and rads March '14, Tx done, port out w/ complications, PEG out in June 2017: probable trigeminal neuralgia Fall 2017: HBOT Jan 18: oral surgery
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