Contributing Member (25+ posts) Joined: Jun 2017 Posts: 30 | I know those treatments absolutely take a lot out of you and it could be up to a year before he's totally back to normal. I know I was 3 months out from my last treatments (cisplatin, rads) and I couldn't even shower without the help of my husband - I had no energy! It came back slowly - when it got to the point that I could shower on my own I still didn't have the energy to dress and comb thru my wet hair. Like I said, it'll come back but slowly and, to me, at baby steps.
When does your husband go back to his oncologists, etc.? Definitely let them know what's going on (or not going on) regarding the nutrition. It sounds like you've been put through some unnecessary battles but....cancer thrives on the malnourished and the weak. It takes good nutrition along with proper amounts of sleep to give your body what it needs to continue battling cancer.
Is it possible for you to get help from a home health aide? Some insurances will pay for that service. I would check into it. Let the health aides deal with the frustrations you obviously have but please, do whatever you can to not give up on your husband's nutrition and his personal hygiene. You'll be thanked when he's back to being his normal self.
Just my opinion....
Susan 04.12.16 1st surgery; rt partial glossectomy; neck dissection; 2/38 lymph nodes positive 05.12.16 Resected T2, N2b, M0 05.24.16 Rad, Cisplatin 10.03.16 Clear PET 04.11.17 Clear PET 06.09.17 1st recur 06.21.17 2nd Surg: rt partial glossectomy; forearm free flap; rt thigh skin graft 11.09.17 2nd recur 11.30.17 Nivolumab 02.06-16.18 Brachytherapy 06.12.18 3rd recur 06.12.18 Lt axillary lymph node SCC 07.05.18 Pain pump placd 08.23.18 Pump removd 10.29.18 PET-CT responds to treatmnt
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