Jennie,
I woke up this morning after a pretty good sleep and the first thing I did is go on this site. Thank you for responding and my heart goes out to both you and your husband Erik as you are both so young. I have to share something with you, I have a real soft spot for Eriks as I named my son Erick because I believe that his name would make him strong , so I know your husband is strong also! I feel the warmth of hope through the computer! I didn't realize there were so many diagnosed with few risk factors. Your camaraderie give me the strength to get moving in the right direction in regards to making sure she is in the right doctor's hands. I made up my mind to tell my Erick about this site first and then maybe he can convince Laura to go on it , as I know it will help. I have work to do now , checking on Doctors !!! so I will join you all later , and thanks from the bottom of my heart for responding Jennie. You are all in my prayers too!!
Kathy