Connie, my dentist gave me fluoride trays per both her opinion and the ENT I think, and hunted up a flavor I could tolerate, on top of it. I didn't use them as I should have, and that was a bad call. I think the radiation would still have done a number on me, but there's no telling ... so if your husband can get them made and will use them, it is well worth the effort to try. It hurt after a while to put anything in the mouth at all, but encourage him to do what he can, as often as he can ... he's going to want those teeth, and there's no getting them back once they're gone. (Dealing with new dentures here, and it's no picnic. Though I must say, they do look nice! But golly, learning to eat with these makes the feeding tube seem like it was a walk in the park. You can quote me if you think that would motivate him. smile )


Surgery 5/31/13
Tongue lesion, right side
SCC, HPV+, poorly differentiated
T1N0 based on biopsy and scan
Selective neck dissection 8/27/13, clear nodes
12/2/13 follow-up with concerns
12/3/13 biopsy, surgery, cancer returned
1/8/14 Port installed
PEG installed
Chemo and rads
2/14/14 halfway through carboplatin/taxotere and rads
March '14, Tx done, port out w/ complications, PEG out in June
2017: probable trigeminal neuralgia
Fall 2017: HBOT
Jan 18: oral surgery