Paul,

Thanks for sharing. Basically last May we spotted the cancer on the floor of my mouth. This came after a 2015 surgery that left me with a bit less tongue and fewer nodes. Anyway, last May my guy said, "It was an outpatient surgery." Wham bam if you will. I went to a well known large facility and they said, "It was eroding the mandible and we needed to do a free flap surgery followed by radiation. Well...I went with my guy. I thought, "They big facility was throwing for the end zone when all we need is a first down."

Turns out the big facility was right. He did what he said he would and then this winter half my jaw is eroded away!! He also said, "It wasn't in the bone!"

So this January I lose half my tongue. The free flap fails and now I've got a pec flap. Not sure how much tissue the large treatment facility was considering packing into my mouth but I might have had a more functioning tongue!

That's my story.



Jay

--2003 SCC Left lateral tongue
T-I
Partial Glossectomy
--2015 SCC Left lateral tongue
T-II N-0 M-0
Partial Glossectomy SND
--1/30/18 SCC T-IV N-0 M-0
Segmental Mandibulectomy, Partial Glossectomy,
Fibular Free Flap (failed)
Emergency flap surgery (partial success)
Leech therapy (partial success)
M.I. in hospital 2 90% blockages
2 stents inserted
--3/2/18 Pec Flap
RAD IMRT 35 (in progress)
Chemo 7 doses Cisplatin (in progress)